Press Clippings

“I was very moved by your article, may HaShem bless you with all that is good and even good health! I studied medicine at Columbia (now known for antiSemetism) in the 1970’s and in my neurology rotation I was introduced to a young (Jewish) woman who was suffering from this exact disease. I never forgot the name of the disease but i never saw a patient who had it (I am a hematologist). She too had spent time with a psychiatrist for a “conversion disoreder.” I had been trained as a social worker prior to studying medicine and could only imagine how frustrating it must have been for you! Prof Avi Reches is a great doctor and very compassionate (I know him a bit from my work at Hadassah. I learned a lot from reading about your coping and perseverence and you have my utmost admiration.” – Deborah Rund

“Have you put this medication into the Every Cure database? Every Cure is trying to match rare diseases to existing medications that may help. It uses AI and relies on crowd-sourced data. Your cure for part of your dystonia could help others”– MG

“I can relate. I also finally got diagnosed with dystonia after many years and visits to neurologists and psychiatrists. It affected my walking but in a different way. I could only walk bent over or backwards. I was in a wheelchair and with PT could walk with a walker. Now, I’m walking with a cane, but i now have cervical dystonia in my neck and blepharospasm around my eyes which cause spasms with neck pain, headaches, and eye spasms. There are times, I have difficulty keeping my eyes open and have used tape. BH, my neurologist now uses Botox injections every 3 months around my eyes and up and down my neck that gives me relief from the spasms. It’s wonderful that we now have a name, but there is no cure, just symptom treatments.” – Dina Leah